Dainere’s Rainbow Christmas Light Display to Bring New Hope 2021

Dainere’s Rainbow Christmas Light Display
Dainere’s Rainbow Christmas Light Display 1
The 5m Reindeer was a crowd favourite this year

The year 2021 was another where the world faced the challenges and adversity of the continuing COVID pandemic.  Awareness and fundraising opportunities for Dainere’s Rainbow were again significantly impacted.

We were so fortunate to hold our annual Christmas Light Display, and this year the light display was aptly named ‘Dainere’s Rainbow Christmas Light Display to Bring New Hope’.  It was a very different display with the requirement of many COVID Safe measures: including check in QR code, signage, hand sanitiser and social distancing.  To keep the Community safe, we were not able to hold our usual stalls, have the display as walk through or have Santa or Mrs Claus visit.

The lights were also tragically affected by numerous storms and winds throughout the month of December, which saw several lights viciously ripped from the roof and ground, some totally destroyed.

Crowds were also down on previous years, many families just choosing to do drive by visits to Christmas Light Displays to remain safe.  We are ever so grateful to all the families; those who come every year and those who are new to visiting who ventured out and experienced the joy, hope and Christmas Spirit that Dainere envisioned for the display.

There was a wonderful positive from the display, despite the many obstacles, and that was sales of ‘Anthony Christmas Bear Book’, beautifully and lovingly written by Jarrett Anthoney and creatively brought to life through illustrations and collaboration by John Mikita (Dainere’s Rainbow Patron).

Given the difficult times, a truly meaningful amount of $279.00 was raised from the Light Display and $1520.00 from Anthony Christmas Bear Book, for a total of $1799.00.  This amount is not only sincerely and humbly appreciated but goes a long way to bringing new hope to children diagnosed with brain tumour.

Unmasking Paediatric Brain Cancer

Reversible Face Masks

Question: So what do you when you have 3 weeks in lock down, a clever Mum who is looking for something to do, a sewing machine that was rescued from a skip bin, some generously donated fabric, a global pandemic, and a charity (and family) that means the world to you?

Answer: Make about 210 reversible face masks to sell to family, friends and colleagues of course! And what a sale it was (they sold faster than lock down toilet paper..)

Why: Because before I met Dainere, I did not know (like most other people….) that brain tumours are responsible for more childhood deaths in Australia than any other disease YET it receives pittance in Government Funding for research.

As you may be aware, this pandemic has bought out the best in most of us and I am so grateful to be surrounded by those people in my part of the world. Over this last term at school, staff and students at both Black Mountain School and Campbell High School bought most of the masks.

They made a donation by using the Make a Difference link on Dainere’s Rainbow Paediatric Brain Tumour Research Fund webpage. And within seconds they had a tax-deductible donation receipt in their inbox from the Sydney Children’s Hospital Foundation.

I know the kids loved seeing the many colourful and bight masks every day as much as I did, plus it is pleasing to know that are reusable and will not take 450 years to break down like the “disposable” masks.

Thank you to Mum, sister Karen, Wamboin Joyce and Bywong Sally for the fabric, the Gillespie’s, the lovely generous lady in line with me at Spotlight who insisted I take $20 towards some extra supplies, and of course the wonderful people that bought masks. Each and every one of them now know of Dainere’s Rainbow, and Dr Ziegler has a little bit more money to continue his vital research.

Super job team. x

Bron Collins – Dainere’s Rainbow Committee Member

Andante Andante Choir Christmas Fundraiser 2021

2021 Andante Andante ABBA Choir Event At Belconnen Markets

On Saturday 4 December, a special event was held to raise funds for Dainere’s Rainbow at the Belconnen Markets.

2021 Andante Andante ABBA Choir Event At Belconnen MarketsThe Andante Andante (Abba) Choir performed a number of Abba songs – some popular hits (Super Trouper, Dancing Queen, Mamma Mia) and some while not usually well known, were just as groovy (As Good As New, So Long)! The performance concluded with the choir performing a number of Christmas Carols including the Aussie Jingle Bells! The choir has a long and special association with Dainere’s Rainbow through an annual end of year performance to raise funds for this wonderful cause. The choir welcomes anybody who wants to join – there is no audition process. If you want to sing Abba songs and have fun while doing so, you are very welcome to join in! You can contact the choir through Facebook (Andante Andante Choir) or via email andanteandantechoir@yahoo.com. The choir practices every Monday at the Uniting Church hall in Braddon.

2021 Andante Andante ABBA Choir Event Flamenco DancersThe event also included a very special performance by dancers from the Flamenco Centre of Canberra. Full of expression, passion, intensity and dancing to incredible Spanish guitar music, the dancers transported the audience to the colourful, festive streets of Andalusia in Spain. Angelica Casado and her eight students showcased incredible rhythm and bold dance moves, with their swirling skirts and tapping shoes! The Centre is very happy for people to join to learn this lively and passionate form of dancing. You can contact them through their website or through their Facebook page Flamenco Centre of Canberra.

Chitra Herft President Andante Andante ABBA Choir

Meet Skye Chalmers
SCHF Community Relationship Manager

Sky Chalmers SCH

Sky Chalmers SCHMy name is Skye Chalmers and I am fortunate enough to have been working at Sydney Children’s Hospitals Foundation (SCHF) for the past 11 years. At SCHF we focus on funding new equipment and technology, supporting art, music and play education activities, improving physical spaces within the Hospitals and funding groundbreaking research across Sydney Children’s Hospital, Randwick, The Children’s Hospital at Westmead, Bear Cottage, NETS and Kids Research.
We have reimagined our purpose and committed to a bold new purpose: Healthy kids- whatever it takes. We want to deliver extraordinary outcomes for children’s health and wellbeing so todays kids can live their best lives and tomorrow’s kids will have access to infinite possibilities.

In my role as Community Relationship Manager, I have the honour of supporting passionate, enthusiastic community groups like Dainere’s Rainbow in their journey to raise funds and awareness for SCHF. Thanks to the tireless efforts of the Dainere’s Rainbow team they have raised over $500,000 to date for critical Brain Tumour research led by Associate Professor David Ziegler at the Kids Cancer Centre at Sydney Children’s Hospital, Randwick. Funding for research projects depends on vital support provided by community groups like Dainere’s Rainbow to ensure patients receive the best chance of a cure with minimal treatment side effects and it provides hope for future generations of Australian children and their families.

I have really enjoyed working with Dainere’s Rainbow over the years and look forward to continuing this relationship for many years to come. Their unwavering support, passion and enthusiasm to fund Brain Tumour research is unparalleled and I am sure that the best is yet to come.

Pot Of Gold Initiative From Dainere for Childhood Cancer Awareness Today and Beyond

Pot Of Gold Initiative From Dainere For Childhood Cancer Awareness Today And Beyond

Pot Of Gold Initiative From Dainere For Childhood Cancer Awareness Today And BeyondThese are inspiring and selfless words shared by Dainere:

“In our lives we often underestimate the true power of a smile, a touch, a kind word, a listening ear, an honest compliment and the act of just simply caring. These all have the potential to turn a life around; tomorrow and everyday take the time to reach out and change a life”.

We would like to invite you to be part of working towards a more prominent and widespread Golden September 2022 for Childhood Cancer by continuing to elevate awareness about Childhood Cancer and especially brain cancer within the Community each and every day.

This is a very special project that Dainere requested and one that we hope will reach far and wide and beyond all expectations……. ‘Pot of Gold’ for Childhood Cancer.

At the end of every rainbow is a pot of gold and from today onwards you can be a rainbow of hope in the lives of children diagnosed with cancer…… start saving gold coins and collect them in your ‘Pot of Gold’ all the way through until 30th September 2022. Then visit the Dainere’s Rainbow website and hit the donate button to make a difference.

Your ‘Pot of Gold’ will go a very long way in working towards the most precious gift in this world…..the reality of a cure!

Canberra’s Haunted Chop Shop Halloween Display 2021 – Ngunnawal ACT

Childhood Cancer Awareness Month – Brain Cancer Awareness Day

Childhood Cancer Awareness Month – Brain Cancer Awareness DayFingers crossed we aren’t in lockdown any longer than planned.

We have 20kgs of lollies & hundreds of prizes ready to go for our Creepy Carnival.

This year we are again raising funds, by collecting gold coin donations, for the amazing Dainere’s Rainbow Brain Tumour Research Fund.

Dainere’s Rainbow are dedicated to elevating vital awareness and raising crucial funds for Australian Research to improve outcomes for every child 0-19 diagnosed with a paediatric brain tumour.

Childhood Cancer Awareness Month – Brain Cancer Awareness Day

In 2019, Minister for Health, Greg Hunt, proclaimed 26 September as Australia’s annual Childhood Brain Cancer Awareness Day.

The aim of this day is to raise public awareness of the impact of childhood brain cancer on these precious children and their families and to highlight the importance of childhood brain cancer research.

Each year on this day there is a focus on one form of childhood brain cancer and for 2021 it is Medulloblastoma. The type of brain cancer that Dainere was diagnosed with and that stole her young life, along with the lives of many other Australian Children.

Medulloblastoma is the second most common type of childhood cancer of the central nervous system. It accounts for 13 percent of cases of brain cancer cases.

Tragically, incidence rates of Medulloblastoma have increased by 1.4 percent per year on average over the past three decades.

While this may sound like a small percentage increase, in total it equates to a shocking 58 percent increase over a 35-year period.

Sadly, the reasons behind this trend are unclear: advances in diagnostic technology and increasing population may very slightly contribute.

Heartbreakingly, survival for medulloblastoma still severely falls behind many other types of childhood cancer.

Global Childhood Cancer Facts for Childhood Cancer Awareness Month

This year approximately 400,000 children globally will be diagnosed with cancer and about 100,000 children will die from cancer. These figures are most likely higher due to the many cases that remain uncounted and unreported. And with the global pandemic these numbers will certainly be impacted.
(World Health Organisation)

  • 400,000 Children are diagnosed with cancer every year
  • 100,000 Children die from cancer every year
  • Brain Cancer kills more children than any other disease worldwide
  • Childhood cancer does not discriminate any child can get it
  • The cause of most childhood cancer is still unknown
  • Childhood cancer is grossly underfunded
  • 1 in 5 children diagnosed with cancer will die within 5 years
  • Childhood cancer is not one disease, there are 16 major types of cancer with hundreds of subtypes,
  • While some cancers like leukemia have a 90% five year survival rate others particularly brain cancer have a 0% survival rate.
  • Treatment times vary from a few months to many years, there are children who spend their whole life in treatment.
  • 90% of children who survive cancer suffer long-term effects
  • The incident rate of childhood cancer is increasing
  • Childhood cancer is not one disease there are 16 major types

Telstra Tower in Canberra Lights Up Gold For Childhood Cancer Awareness Month

Telstra Tower In Canberra Lights Up Gold For Childhood Cancer Awareness Month

Telstra Tower In Canberra Lights Up Gold For Childhood Cancer Awareness MonthWith our heartfelt and humble gratitude to Telstra Tower Canberra for helping turn September Golden by lighting the Tower Gold for Childhood Cancer Awareness Month.

We hope that Telstra Tower being illuminated Gold will shine a light on childhood cancer, which is what Dainere so selflessly, inspiringly and passionately continually advocated for during her short lifetime.

Thinking of all the children battling, the survivors and those who have had their lives stolen to childhood cancer.

The photograph of Dainere is from a treasured day that our family visited Telstra Tower as part of Dainere’s ‘special list’ and together we experienced Dainere’s joy at being able to appreciate, acknowledge and view her birthplace from the iconic and majestic Tower.

You’re the Stars Trivia Gala 2021 Report

Thank you! You’re the stars Trivia Gala 2021 raised $25,955

On Saturday 19 June 2021, over 250 guests attended the Dainere’s Rainbow Brain Tumour Research Fund’s You’re the Stars Trivia Gala event at the QT, Canberra.

After not being able to hold our annual gala event in 2020 due to COVID-19, in 2021 we held our first ever “You’re The Stars” Trivia Gala. This theme was chosen to show our supporters that they are the “stars”; to thank them for their support and shine a light on them as the “stars” of the evening.

We are very thankful to our supporters and happy to announce that $25,955.00 was raised from our “You’re The Stars” Trivia Gala.

People really got into the spirit of the night, with many going to great effort with their costumes and interpreting the theme in different and interesting ways. There were photographs taken on the red carpet on arrival as people entered the room, which was staged with lighting by Eclipse Lighting and Sound to add a colourful ambiance to the room.

Once everyone was seated the wonderful Michael Bower MC announced for people to look under their dinner plates as there was a lucky door prize for not just one person, but one person on each table. Special thanks to Mel’s Massage for kindly donating the many lucky door prizes. We had lots of fun challenging ourselves with the trivia questions and Michael did a great job hosting the evening.

During the evening we took time to watch a special slideshow about Dainere and reflected on Dainere and all the children who inspire us to continue to work towards finding a cure for paediatric brain tumours.

There was a lot of interest in the silent auction, live auction, raffle and merchandise for sale and we remain thankful to our partners who made generous donations and our supporters who purchased raffle tickets, made donations and bid generously on items.

Much fun was had dancing to the sounds of Baby Boss Groove. It certainly was a sight to see the various characters from Disney, Wizard of Oz, Star Wars, classic movies and various others dancing together.

So many people commented on the love and support in the room, it really was a great “vibe”. An aim of the evening was to reconnect with old friends and make new friends and we certainly achieved that. The Dainere’s Rainbow family are humbled by the love, support and generosity of all who attended. We look forward to coming together again to raise awareness and much-needed funds for paediatric brain tumour research. 100% of all funds raised go to Associate Professor Ziegler, at The Sydney Children’s Hospital, to continue his inspirational work making a difference for children and families.

Monique Mendez Dainere’s Rainbow Committee Member

Dainere's Rainbow is a not for profit organisation - 100% of all funds raised or donated go to paediatric brain tumour research at Sydney Children's Hospital
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