Welcome to 2019

There are so many big plans for Dainere’s Rainbow in 2019 to see a brighter light of hope and positive changes for the precious children diagnosed with paediatric brain tumours, those who are currently fighting and those that have survived but face each day with such devastating side effects from treatment.

All in honour of Dainere and the other most beloved children that have had their lives stolen by this number one disease killer of children in Australia. An entire classroom of children should not be losing their lives to this disease each year.

2019 is the year that Dainere should have been celebrating a significant milestone; her 21st Birthday and it will also be ten years since her truly life changing diagnosis. There are other special family events that she should be there for in 2019 but tragically cannot be.

Again, we reach out to you all with our most heartfelt, sincere and humble gratitude and would be extremely honoured to have your incredible support again in 2019, it is a united team effort that can create massive and positive change.

 If you would like to assist us to continue Dainere’s most selfless and inspirational work, please follow the Dainere’s Rainbow Facebook Page, Instagram, regularly read the website, join the mailing list or attend any Dainere’s Rainbow events or awareness raising activities.

We would like to share words from Dainere to begin 2019.

“It is so hard to believe that another year has passed by, we have a Calendar at home and it has a little inspirational poem for New Year on it, it does not say who wrote it, I would like to share it with you all, as I feel it sums up how we can live our lives throughout the coming year.

Happiness depends upon your outlook on life
Attitude is just as important as ability
Passion, find yours this year
Positive thoughts make everything easier
You are unique with special gifts, use them

New beginnings with a New Year
Enthusiasm, a true secret of success
Wishes, may they turn into goals

Years go by quickly, enjoy them
Energy, may you have lots of it
Appreciation of life, don’t take it for granted
Relax take the time to relax this coming year.”

Dainere’s Rainbow Christmas wonderland lights display 2018

From 1st to 25th December the Dainere’s Rainbow Christmas Wonderland Lights Display took place. The display was originally the mastermind of beautiful Dainere, who was inspired to bring joy, hope, smiles and Christmas Spirit to the Community as well as elevating vital awareness and raising desperately needed funds for paediatric brain tumour research. She did all this whilst in pain and used her own pocket money to purchase many of the original lights in the display. Some of those lights are still part of the display today.

Dainere left the family with many ideas for expanding the lights display to continue to give a knowledge of paediatric brain tumours throughout the Community and of course raise funds.  She also asked that the lights continue to be meaningful and to give to the Community a gift of warmth and enjoyment from the lights.

This year the display took on a brand-new look and format which received extremely positive feedback from many of our wonderful return families as well as people who had never visited before but left with enormous smiles and a twinkle in their eyes vowing to put the display as a must visit for 2019.

We were extremely fortunate to have all the way from the North Pole Mrs Claus visit the lights on 22nd and 24th December this year and she has promised to return in 2019.  We also had the truly talented Molly Coddle Parties applying the most sparkling Christmas Glitter Tattoos on 22nd December as part of the Anthony Bear Event that evening.  Santa himself also popped along on several evenings and was very popular with many selfies taken with him.

There were big winners on the lucky numbers, beautiful craft items many made by the marvellous and talented Alba purchased as gifts, excitement at the lucky dip prizes and the scrumptious gingerbread made by the incredible Liz, Chris and Jenny  we were told several times that it was the best gingerbread ever!

A question that is often asked by visitors is – How long does the display take to plan and put up?

The planning goes on throughout the year, we are already following Dainere’s guidance and are working on a special new addition to the lights in 2019.  It takes months of preparation including checking and repairing lights and then putting them up over a two-week period.  It also involves maintaining the lawn and gardens and advertising.

The other question we often are asked is where we get our lights from?

We do get some from local businesses, but many of the unique ones we find online. The lights are funded by our family, as are the small giveaways each night, they are our gift to everyone.  The items on the stalls we have had are donated by the most wonderful people with the light of human kindness and Christmas Spirit, we are so grateful to those people.

One thing to remember is that 100% of all funds raised at the Dainere’s Rainbow Christmas Lights Displays go directly to crucial research programs and projects that are in honour of Dainere and as directed by our family by the extraordinary Associate Professor Ziegler and his team of amazing researchers at Sydney Children’s Hospital, Kids Cancer Centre.

We wish to thank every person who supports the Dainere’s Rainbow Christmas Wonderland Lights Display and we would like to announce that a grand total of $2857.60 this December.

A beacon of light for paediatric brain tumours

On Saturday 22nd December in conjunction with the Dainere’s Rainbow Christmas Wonderland Lights Display, there was a special gathering of the 2018 Myer Christmas Bear ‘Anthony’ and his owners.

A downpour of rain just prior to the event was followed by the most magnificent and rather poignant rainbow that arched across the early evening sky and then a cool but chilly night.

Many from the Canberra Community joined this splendiferous event holding their treasured ‘Anthony Bear’, knowing that they were creating a beacon of light and hope this Christmas for children diagnosed with paediatric brain tumours.

The meaning and significance of Anthony was shared as well as the true spirit of Christmas with smiles, new friendships, a greater knowledge and awareness, the gift of giving and fabulous fun had.

The evening had the incredible Molly Coddle Parties applying the most fabulous glittering Christmas Tattoos to a line of excited children, the extraordinary Mrs Claus greeting guests with such warmth and taking orders to pass back to Santa, a stall of beautiful gifts, some big winners on the lucky numbers, Christmas Craft Activities for the children and adults, dazzling glow sticks, a candy cane or two and the brightly shining Christmas Lights to delight all.

Background

In a historic; first time ever tribute to an individual, Myer named their 2018 Christmas Bear as a tribute and honour to the inspiring Canberra Local, Dainere Anthoney, after hearing her heart-warming story of strength, optimism and her continued and selfless drive to support other children battling paediatric brain cancer which tragically took her young life in 2013.

Dainere was also an avid Myer Christmas Bear collector; having received one from Santa Claus every year from birth; her favourite was Theodore who supported her throughout her illness and rests with her today.  Dainere’s story and her love of the Myer Christmas Bears re-enforced that for many; both young and old that the Myer Christmas Bear is far more than just a bear.

Dainere’s family; Stephen, Yvonne, Nalani and Jarrett and their small team of volunteers with enormous hearts, passion and enthusiasm who form the Dainere’s Rainbow Committee continue Dainere’s legacy and her tireless paediatric brain tumour advocacy and work of elevating awareness and raising funds supporting the work of Associate Professor David Ziegler at Sydney Children’s Hospital, Randwick in developing and testing new and innovative treatments for children with brain tumours.

Paediatric Brain Cancer kills more children than any other disease in Australia; taking the lives of a classroom of children each year.

The Anthony Bear is still available to purchase from all Myer stores nationally and online.

Myer Christmas Bear ‘Anthony’

Dainere’s favourite teddy bear, Theodore, had travelled everywhere with his owner since the age of four, and in her final months he was right beside her as she realised her dreams of feeding a cheetah and riding in a Hummer with her.

Theodore was the favourite of Dainere’s collection of 14 Myer Christmas Bears – a huge collection that started the year she was born in 1998 and continues to this day.

Being surrounded by the bears gave Dainere incredible comfort during her four-year battle with brain cancer; a fight that began in 2011 with a brain tumour and ended with Dainere’s death in 2013. (She was buried with Theodore.)

In an announcement this week, retailer Myer confirmed this year’s Christmas Bear is named Anthony – a tribute to Dainere and the entire Anthoney family.

Anthony the bear will be available for purchase at every Myer store in Australia, with $1 from every bear going to the Myer Stores Community Fund.

Andante Andante ABBA Choir Christmas Fundraiser 2018

This Event was organised by our wonderful Committee Members Anne and David who are members of the Andante Andante Choir Inc. AKA the ABBA Choir who hosted this incredible evening to elevate awareness of paediatric brain tumours and raise funds for Dainere’s Rainbow.

This evening was Sold Out prior to the Event and on the night the beautifully decorated venue was filled with guests who were entertained by this incredibly talented group of amazing people, feet were tapping, the entire room sang along, and the smiles and joy lit up the room. Everyone was certainly given a Christmas gift of music.

There were two fabulous lucky door prizes which were so generously donated by Anne and David, a raffle with three outstanding prizes on offer and scrumptious supper. Winning raffle ticket numbers were Green F79, Black D75 and Green F57.
Special mention of a truly special act of human kindness from Cleo who re-donated her raffle prize, which was auctioned off to raise an extra $60.
With 100% of all funds raised on the evening $1015.00 supporting the dedicated and vital research of Associate Professor Ziegler and his team at Sydney Children’s Hospital Kids Cancer Centre.

We were able to share information about Dainere, the fund and everything we do from awareness raising, fundraising, our upcoming events and supporting families through advocacy and lobbying.

With heartfelt gratitude to all those who attended the event, without your support we would not be able to work to give hope and create change.
If you would be interested in learning more about the Andante Andante ABBA Choir you can visit their website at www.AndanteAndanteChoir.com. They also welcome new members and you don’t need any previous experience, there are no auditions required and the first two sessions are free!

Mother Teresa community picnic and sustainability fair

Blue skies, sun shining, gusty breezes and an air of excitement set the scene for the Mother Teresa Community Picnic and Sustainability Fair on Friday 30th November 2018.

Dainere’s Rainbow was so honoured to be able to have a Stall at this wonderfully well planned and set out event, congratulations to those involved in taking on such a massive task and making it so successful.

The Event had a magnificent Community atmosphere with large crowds and we were able to elevate a new and significant awareness of paediatric brain tumours to many new faces in the Community as well as raise more vital funds for research to bring hope and create change.

A total of $126.50 was raised on the day and an extremely excited Cooper Evans won the Dainere’s Rainbow Prize Pack Raffle.

It is through Community Events like this that the Dainere’s Rainbow Team are able to provide a knowledge and awareness of paediatric brain tumours as well as the important work of Dainere’s Rainbow and have the opportunity to meet some of the most extraordinary people.

Ainslie Group be.giving Initiative 2018

Dainere’s Rainbow were one of the three Community Organisations selected for the month of November to be part of the Ainslie Group’s wonderful Be.Giving initiative which has a very special purpose of giving back to the Community.

Every time a purchase was made at the Gungahlin Lakes Café between the 1st and 30th November 2018, a token was issued and patrons could vote for their preferred group.

The organisation with the most tokens at the end of the Month receive a $300 donation and the other two receive $100 each.

At the end of the month the tokens were counted and in an extremely close count, Dainere’s Rainbow is so humbled to announce that we will receive a $100 donation.

With heartfelt gratitude to the Ainslie Group and Gungahlin Lakes for giving back to the Community through the Be.Giving Initiative in 2018 and also to all those who enjoyed a coffee and delicious cake and put their token in the Dainere’s Rainbow box.

Heathers The Musical (Dramatic Productions)

Dramatic Productions astoundingly exciting major musical Heathers was held from 12th to 27th October at the Gungahlin Theatre. the high energy, fun and funny – Heathers.

Heathers is based on the 80’s movie of the same name, that starred Winona Ryder and Christian Slater. The musical adaptation, while light-hearted, also touched on the serious issues of bullying and violence in schools. Heathers the Musical is a supercharged laugh-out-loud, rock musical about the students of Westerberg High, as they navigate raging hormones, bullying from jocks, scorn from the popular girls, all the while just trying to stay alive!’

It was a wonderfully entertaining show, filled with high energy, humour and phenomenal talent. The cast really was incredible, just 18 of them in total, many playing numerous roles, all volunteers and all possessing the highest and most amazing and professional standard of ability.

Richard and the team from Dramatic Productions wanted to make a Dramatic Difference in the Community and selected twelve Charity Groups that would receive 10% of all ticket sales on the evening of the show that was assigned to them. Then the incredible Steve from Masonicare came onboard matching all donations.

The Dainere’s Rainbow Show was on 20th October, we would like to express our gratitude to all those who attended the show which was almost a full house and was the most responsive audience which the cast were absolutely thrilled about.

A presentation took place on November 20th for all the twelve local Charities and Organisations that had been selected to support, we are just so absolutely humbled to announce that Dainere’s Rainbow received $1747.50. This will go a long way in supporting a current research project being undertaken by the incredible Associate Professor David Ziegler at the Sydney Children’s Hospital, Kids Cancer Centre.

We are also thrilled to inform you that It was announced that the production in 2019 will be The Producers which will be directed by the incredibly talented Rachael Beck and the lead role will be performed by Daryl Somers, a legend of Australian television and musician, as well a triple Gold Logie Winner.

The Haunted Chop Shop Halloween Display

The lovely Amy from Ngunnawal has been decorating her home for six years. Having a passion for Halloween after living in America, she spends many hours turning her home into one of the most creative and spookiest homes in Canberra at Halloween time.

This year Amy also wanted to make a difference and used her SPOOKTACULAR Display to raise funds for Dainere’s Rainbow and to Scare Brain Cancer Away. Amy is a true Dainere’s Rainbow Champion and managed to raise an impressive $250.

With heartfelt and humble gratitude to Amy, her family and everyone who visited and donated!

Celebrate Gungahlin – Guzman Y Gomez Raffle

The wonderful Jatin (Franchise Owner) of Guzman y Gomez in Gungahlin showing a true act of human kindness held a raffle at the Celebrate Gungahlin Event on 20th October.

The store also helped to elevate awareness of paediatric brain tumours on the day. The weather was stormy and rather atrocious which saw the event finish up early, however, a total of $80 was raised through the raffle and a further $81.10 in donations for a grand total of $161.10.

Jatin and his crew are more October Dainere’s Rainbow Champions.

Dainere's Rainbow is a not for profit organisation - 100% of all funds raised or donated go to paediatric brain tumour research at Sydney Children's Hospital
Our Corporate Partners

Sydney Children's Hospital Foundation are proud to display the new Registered Charity Tick from the Australian Charities and Not-for-profits Commission (ACNC), which aims to gives reassurance to the public that the charities they support are transparent and accountable. We rely on your donations and volunteering to ensure we can continue our vital work, so we want you to know your support is making a difference. Where you see the logo, it means the charity is registered with the ACNC so the public can easily find out what they do, who their beneficiaries are, how they are governed and how they manage their finances.