Information for families

If you or your loved ones are diagnosed with Cancer, this information will be invaluable.

There are now almost 2000 people diagnosed with brain cancer each year and over 1500 deaths.

Often families are left with nowhere to turn to find answers to questions they may have whilst being on this journey with their loved one.

We have put together information on the following pages which we hope will help you to understand the terms, expectations and procedures based on the experience of Dainere and her family.

We welcome any questions or comments from everyone who is in need. Please reach out and we will try to help you as much as possible.

What Are The Symptoms — What are the symptoms

Who Is The Treatment Team — Who is the treatment team

Procedures You Will Undergo — Procedures you will undergo

Medulloblastoma Tumors — Medulloblastoma tumors

Words You Might Hear — Words you might hear

A special initiative of Dainere’s Rainbow.

We acknowledge the traditional custodians of the land where we meet and work, the Ngunnawal people, and the many other Aboriginal and Torres Strait Islander peoples from across Australia who have now made Canberra their home. We celebrate and respect their continuing culture and the contribution they make to the life of the ACT and region.

Dainere's Rainbow is a not for profit organisation - 100% of all funds raised or donated go to paediatric brain tumour research at Sydney Children's Hospital

Our Corporate Partners

Sydney Children's Hospital Foundation are proud to display the new Registered Charity Tick from the Australian Charities and Not-for-profits Commission (ACNC), which aims to gives reassurance to the public that the charities they support are transparent and accountable. We rely on your donations and volunteering to ensure we can continue our vital work, so we want you to know your support is making a difference. Where you see the logo, it means the charity is registered with the ACNC so the public can easily find out what they do, who their beneficiaries are, how they are governed and how they manage their finances.