Sydney Children’s Hospital committee visit

On Valentines Day several of the members of Dainere’s Rainbow Committee and representatives from our wonderful Corporate Partners Qcity Transit visited Sydney Children’s Hospital in Randwick.

The visit was an emotional one: one of sadness; one of affirmation; one of admiration; one of pride; one filled with memories and one of hope.

We were given a comprehensive update and viewed the extraordinary work being done by the phenomenal Associate Professor David Ziegler and his research Team using the valuable funds that are raised by Dainere’s Rainbow Brain Tumour Research Fund.

Associate Professor Ziegler, runs the largest laboratory in Australia dedicated to finding new treatments for childhood brain cancer. Within the CCIA he has also established a translational research group to take discoveries made in the laboratory back to the patients who desperately need new treatments.

“Funding for all of our research projects and programs depends on vital community support to allow us to offer new hope for future generations of Australian children and their families” – Associate Professor David Ziegler.

Then, it was a behind the scenes confronting and emotional tour of the paediatric oncology wards; where children courageously carry on the fight to survive and recover under the incredible care of the doctors, nurses and support staff.

We saw exhausted and worried parents who each day are by their child’s side, wishing that they could change places with them or be able to kiss them and make it all better.

The visit also was a date that in 2012 brought much heartache, as on that Valentines Day our family were told that Dainere’s cancer had spread throughout her spine and brain and that all treatment options had been totally exhausted. At the age of just fourteen, Dainere was told that she would not have much time left on this earth.

We all wish that there was much more we could do to help bring about a cure to this hideous and non-selective disease.

We will never, ever give up as we continue to do everything we possibly can to significantly increase awareness and the funds that are so desperately required to ensure the healthy survival of every single precious child diagnosed with brain cancer.

We acknowledge the traditional custodians of the land where we meet and work, the Ngunnawal people, and the many other Aboriginal and Torres Strait Islander peoples from across Australia who have now made Canberra their home. We celebrate and respect their continuing culture and the contribution they make to the life of the ACT and region.

Dainere's Rainbow is a not for profit organisation - 100% of all funds raised or donated go to childhood brain cancer research at Sydney Children's Hospital
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Sydney Children's Hospital Foundation are proud to display the new Registered Charity Tick from the Australian Charities and Not-for-profits Commission (ACNC), which aims to gives reassurance to the public that the charities they support are transparent and accountable. We rely on your donations and volunteering to ensure we can continue our vital work, so we want you to know your support is making a difference. Where you see the logo, it means the charity is registered with the ACNC so the public can easily find out what they do, who their beneficiaries are, how they are governed and how they manage their finances.