City2Surf 2015

In 2013 Jarrett ran his toughest and most significant race of his life. Not only had he recently lost his beloved little sister, Dainere, he was running in the event that they had worked on together as a special way to raise significant awareness and funds for paediatric brain tumour research and he also suffered a knee injury whilst training hard just a couple of weeks prior to the event.

In 2014, he again ran the same race alongside his special older sister Nalani, running squad great mate Mathew and new runner the wonderful Bridget as part of Team Dainere’s Rainbow.

Now again in 2015 when he could have run the race in the elite preferred start and have the advantage of an amazing start and running with the best and fastest, he has chosen to selflessly run the race as a Gold Charity Runner for Sydney Children’s Hospital Foundation and Dainere’s Rainbow Brain Tumour Research Fund as he believes and is passionate about continuing Dainere’s legacy of significantly elevating awareness and funding for paediatric brain tumours.

The race is the world’s largest fun run – The City2Surf and it is only three weeks away today.

Jarrett wishes to express is most sincere, humble and grateful thanks to everyone who has donated.

Christmas in June Gala Dinner 2015

We wish to express our heartfelt and sincere gratitude to all those who joined us on Saturday 20th June at Thoroughbred Park for the Beyond Bank Australia Christmas in June Gala Dinner proudly hosted by Dainere’s Rainbow Brain Tumour Research Fund. The evening raised a phenomenal $25,523.77.

We are extremely honoured, humbled and sincerely grateful to have had the support for the dinner of our extraordinary major sponsors Beyond Bank Australia, Tatts On Tatts Off, MK Floors and Transit Graphics.

The evening was a splendiferous night of fine foods, jolly laughter and merry melodies in celebration of and as a legacy to Dainere and her passion, selflessness, inspiration and devotion to raising awareness and funds for paediatric brain tumour research.

Together we can take action, give hope and create change for children diagnosed with brain tumours and one day see the reality of Dainere’s greatest wish in life of a cure being found for the disease that not only so viciously, cruelly and devastatingly stole her young life but is the number one disease killer of children in Australia.

Sorbet Fashion Show 2015

Today was a special day at Sorbet Canberra Outlet Centre. A Charity Fashion Parade was held for Dainere’s Rainbow Brain Tumour Research Fund.

What a truly fabulous parade it was with all those who attended having the most splendiferous time and helping to raise awareness and funds for desperately needed research for paediatric brain tumours.

Those that attended absolutely adored the versatile, stylish, flattering and fabulous fashions, the delicious food delights and the wonderful raffle prizes.

We are so proud to announce that ticket sales raised a total of $1170 and the raffle raised a further $125.

We would like to express our most deepest and heartfelt appreciation to the incredible Jo and her amazing team at Sorbet, Kay Harrison for her extraordinary organisation and dedication, the very beautiful models, the talented makeup artist from CMA, GG’s Flowers the inspirational florists for the most rainbowiffic floral arrangement for a raffle prize and to those who attended.

Together we can take action, give hope and create a change for paediatric brain tumours so no children will have to suffer as Dainere and others have, will and are from this most horrendous disease.

Bus Advertising Campaign – July 2015

A campaign sponsored by local bus company Qcity Transit in Queanbeyan has been launched today by Senator for the ACT Zed Seselja to assist in creating vital awareness of Paediatric Brain Tumour Research and Funding across the wider Canberra and Queanbeyan regions.

Two buses with their bright ‘Dainere’s Rainbow’ themed advertisements will be used to draw attention to the special cause. The campaign will direct people to Dainere’s Rainbow Brain Tumour Research Fund which was created after Dainere Anthoney aged 16 of Gungahlin was diagnosed with a brain tumour on 24 March 2009 and passed away on 24 June 2013.

Dainere made it her aim to increase awareness of the horrific disease through publishing books about the illness including a children’s book about how a child should be welcomed back to school following treatment. The book has since been placed in every Government school library in the ACT. Dainere was also posthumously named as the Young Canberra Citizen of the Year in 2013.

100% of all funds raised go directly to Paediatric Brain Tumour Research at the Sydney Children’s Hospital Kids Cancer Centre in Sydney. The campaign will run indefinitely on the buses.

Dainere’s photo and her special words appear on the back of the buses: “My little voice could only make a small difference but together many voices could create change.”

“Dainere was an inspiration and a credit to our community. She showed me that your age was no barrier when it came to getting involved and helping others,” Senator Seselja said today.

“I’m honoured to be part of the official launch of the Qcity bus campaign today and look forward to seeing the buses around our local area.

“I welcome interest from likeminded businesses and individuals to make contact with Dainere’s parents Stephen and Yvonne Anthoney or the Fund Patron John Mikita, to discuss how you can assist with raising awareness. This insidious disease effects one person and their family in Australia every 5 hours and is the number one cancer killer of Australian children,” Senator Seselja concluded.

QCity Transit carries over 6,500 school children daily across our bus network. The buses will operate widely in the region down towards Cooma, up to Yass in the north, and throughout the Canberra and Queanbeyan region with school pickups, drop offs and inter peak charter. For more information on Qcity Transit go to www.qcitytransit.com.au

Christmas Light Display 2014

Announcing that Dainere’s Rainbow Splendiferous Christmas Light Display and Stall 2014 was able to spread vital awareness about paediatric brain tumours and also raised the wonderful total of $672.85. We are so extremely grateful to those in the Canberra Community who despite tough times gave so generously.

These funds are so deeply appreciated not only by us but also by Dr David Ziegler and his team at The Sydney Children’s Hospital so that they can continue their dedicated research; looking at paediatric brain tumour biology, testing new drugs, working on novel new treatments with less devastating side effects and wanting to discover a cure so children don’t have to suffer and have their future stolen by this disease.

In 2012 Dainere had a special dream of creating a Christmas Light Display to bring joy throughout the Canberra Community whilst raising desperately needed awareness and funds for paediatric brain tumours which she was so passionate, determined and selfless about.
In 2015 we hope the Light Display throughout December will sparkle, illuminate, be magical, give joy and love and be as splendiferous as Dainere’s most radiant smile.
For our beautiful angel we will be continuing her dream and following her written wishes at this most blessed and special time of year and also see her greatest wish in life of a cure being found for the most insidious disease that stole her young life become a reality.

Hope to see you during December next year with a smile on your face and your hearts filled with joy whilst enjoying Dainere’s Light Display.

City2Surf 2014

Nalani and Jarrett along with Mathew and Brigitte are running as part of SCHF-Team Dainere’s Rainbow. They have all been training hard despite some terribly cold weather and are all passionate about raising awareness and funds for paediatric brain tumours for Dainere’s Rainbow Brain Tumour Research Fund and continuing her most inspirational, selfless, tireless and committed legacy.

Dainere’s greatest wish in life of improved treatments, early detection, new clinical trials and a cure being found for the horrendous disease that stole her life and the life of so many other precious children.

Also, if Jarrett raises at least $500 in the month of July then he will have his hair cut short. He is about half way there at present.

They are also extremely motivated and inspired by the extraordinary efforts of Michael Shelley and Jessica Trengove in the Commonwealth Games Marathon.

With sincere gratitude to everyone who shared or donated to City2Surf 2014 an amazing total of $5,840.50 was raised as well as desperately needed awareness of the disease in the Community.

Inaugural Gala Dinner 2014

We wish to express our deepest and humble appreciation to each and every person and Community Sponsors for your generosity which contributed tremendously towards the Dainere’s Rainbow Brain Tumour Research Fund Inaugural Memorial Dinner. It truly was a splendiferous evening and so extraordinarily colourful. What an amazingly special way to honour the memory of our most beloved Dainere and continue her legacy of raising desperately needed awareness and funds for paediatric brain tumours.

It is due to your support that Dainere’s Rainbow Brain Tumour Research Fund Inaugural Memorial Dinner held on 21st June 2014 raised an incredible $20,100.00.

These funds go towards the research of the devoted Dr David Ziegler and his team at The Kids Cancer Centre at The Sydney Children’s Hospital who are working towards improving the outcomes for all children with brain tumours, through a comprehensive research program that stretches from investigating the basic biology and genetics of childhood brain tumours in the laboratory, to the implementation of novel treatment strategies in state of the art clinical trials.

At the dinner a speech that Dainere wrote was read, this is part of what was in that speech, this is why it is so important to continue Dainere’s legacy.
“My over four year journey with Medulloblastoma was like the most furious storm, I believed I was given my journey for a special reason and I was positive that it was not only to raise awareness and funds to help others in the future but also to inspire, give hope and courage. My mantra in life and title of my first book was ‘You Have To Go Through A Storm To Get To A Rainbow’. I fought as hard as I could against this horrendous disease but the storm was too strong and has taken my life. There are so many things I will never get to achieve, so many new adventures I will never know, I only wish I had more time.

My rainbow was one of hope, I still want it to be that, when other people see a resplendent rainbow in the sky after a storm I want them to be inspired, think of my greatest wish and to continue to raise awareness about brain cancer in the Community, my little voice could only make a small difference but together many voices can create a change”.

Remember that together we can raise our voices and create change by raising awareness about this horrendous disease and see Dainere’s greatest wish in life of a cure being found for paediatric brain tumours.

Rainbow Run 2014

Our first Rainbow Run was a major success thank you to all this involved who helped make this event possible. We hope to continue this event in the future and make it something all schools can be involved in.

Special Guest Speaker – Evatt Primary School

From the Principal –
I have organised to have a contender for the Young Australian of the Year 2105, Jarrett Anthoney to address the assembly. Life changed forever when Jarrett Anthoney’s little sister Dainere was diagnosed with a brain tumour.

Dainere was to survive nearly five years of debilitating treatment with severe side effects before passing away, aged 15, in 2013.

During those five years, Jarrett built skills and knowledge to help raise awareness and funds to fight the number one killer of children in Australia. Today, Jarrett is a resilient young ambassador who gives courage, hope and a voice to children and families who suffer from this terrible disease.

Making great personal sacrifices, Jarrett identifies and drives many projects to support the charity that bears his sister’s name – Dainere’s Rainbow Brain Tumour Research Fund.

In 2013, Jarrett was the top fundraiser in the 2013 Sydney City2Surf, raising $52,150 for the Sydney Children’s Hospital Foundation.

With long-term commitment and vision, Jarrett is determined to make a difference, and to share Dainere’s lesson that “you have to go through a storm to get to a rainbow.”

Evatt School will follow up with a Teddy Bear fundraising day next week, where the SRC will ask for a gold coin donation to support this worthwhile cause. Students and staff can bring in their Teddy Bears.

Yesterday I had the honour of going into Evatt Primary School and talking briefly about my incredible little sister Dainere, brain tumours and my initiative of starting “Teddy Bears For Brain Tumours”-a day where students bring in there favourite teddy bear/soft toy with a gold coin donation with all money going to Dainere’s Rainbow Brain Tumour Research Fund. With Evatt Primary getting behind it, I am hoping to get many more Canberra schools supporting this also. One school may be a small start, but with persistence and hard work it will grow into many more schools and more of the much needed awareness and funds for paediatric brain tumours.
~Jarrett

Dainere's Rainbow is a not for profit organisation - 100% of all funds raised or donated go to paediatric brain tumour research at Sydney Children's Hospital
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